Perlara PBC

I’ve got a rare genetic disease,
but I’m much more than that.

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Perlara is a scientific discovery Public Benefit Corporation that works with patients like me and drug companies to find treatments for diseases previously believed to be too rare to cure


We have a mighty ship for our quest

Our scientists, families and BioPharma companies are collaborating to turn discoveries into drugs.


My PerlQuest is the scientific part of my journey,
which I’ll share with you as we learn.

Follow a PerlQuest

Introducing Perlara

Last month at the 5th annual Global Genes Patient Summit, we announced our rebrand from Perlstein Lab PBC to Perlara PBC. Together with our partners at Valley Design Group, we created a new logo/mark that embodies the excitement and hope of scientific discovery. To go...

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