Author: Ethan Perlstein

2018 Parseghian Conference Recap

2018 Parseghian Conference Recap

I just attended the 2018 Michael, Marcia, and Christa Parseghian Scientific Conference for Niemann-Pick Type C (NPC) research. My mind is still spinning from all the productive interactions and conversations I had over three session-packed days at The Westin La Paloma...
Economies of Rare

Economies of Rare

Economies of scale are the efficiencies unlocked by large numbers. I’ve come to realize that the efficiencies of scale can emerge at the opposite extreme of rare – especially ultra-rare – genetic disease communities, which can number as few as dozens to thousands of...
Our 2017 Benefit Corporation Report

Our 2017 Benefit Corporation Report

Today is Perlara’s birthday — 4 years old!   As the first biotech public benefit corporation (bioPBC) we embraced openness in business and science from the start. As part of that commitment to accountability, I’m pleased to share our 2017 Benefit...
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