Last month, we launched Perlara On the Go, a monthly post updating you on upcoming events – be they conferences that Perlara team members are participating in, events that may be of interest to the life sciences community at large, or recaps of past events. Look for it at the beginning of each month!
July 13 – 14, 2018
Palo Alto, California
The 5th annual NGLY1 conference, where families affected by the disorder gather from around the world, and doctors and researcheers share new science and treatment ideas.
Attended by Ethan Perlstein, who will be speaking at the event
July 18 – 22, 2018
With “United in Hope” as its theme, the Phelan-McDermid Syndrome Foundation will hold its 11th biennial conference, the 2018 International Family Conference and Phelan-McPosium. The goal is to give caregivers the opportunity to engage with researchers and other families, and to give them hope for the future as PMS research continues to progress.
Attended by Jessica Lao, who will be presenting
Look for recaps of the ML4 Research Conference, UMDF Mitochondrial Medicine 2018, CE Neuro and CE Aging conferences on the Perlara blog in the coming weeks!
By Ethan Perlstein
Read Ethan’s reflections on the 2018 Michael, Marcia and Christa Parseghian Scientific Conference, the arc of NPC research, and on being a member of the NPC rare disease community.
Industry at Large
July 19 – 22, 2018
The Batten Disease Support and Research Association’s signature annual event, where participants connect with other parents, learn about patient care, and the latest research. Researchers will share posters and help answer questions.
July 21, 2018
The EveryLife Foundation and Global Genes partner for RARE on the Road, a Rare Disease Leadership Tour to bring critical education and insights to rare disease patients, caregivers and other advocates, and to activate the rare disease community at the local level.