October 3 – 4, 2018
The 2018 RARE Patient Advocacy Summit, organized and hosted by Global Genes, brings together rare disease patients, caregivers, advocates, scientists and academics, industry thought leaders, and medical professionals to learn, network, and collaborate.
October 5, 2018
Los Angeles, CA
Ethan Perlstein will be attending
By Ethan Perlstein
Read Ethan’s recap of his experience at the Mucolipidosis Type IV Foundation’s ML4 Family and Research Conference 2018 in Atlanta, as well as an overview of Perlara’s work in developing ML4 worm and fly screens.
By Jessica Lao
Jessica recaps the Phelan-McDermid Syndrome Foundation (PMSF) 2018 International Family Conference in Dallas, where she met families from all over the world. With “United in Hope” as its theme, the conference united patients, advocates and researchers in hope for a cure.
Industry at Large
September 12 – 16, 2018
The Batten community convene an international scientific meeting every two years to share recent discoveries and advances for NCL disorders in order to support basic and clinical research and the development of new treatments.
September 21 – 22, 2018
The AGSD Conference is an annual meeting where those affected with glycogen storage diseases, their families, and medical professionals can connect with others to provide mutual support, gain a better understanding of the GSDs and their implications, and learn about the latest research findings and upcoming studies.
September 25 – 27, 2018
New Orleans, LA
Champions Retreat is the annual gathering of mission-driven leaders of the B Corp community focused on collective action and continuous improvement. Each year, hundreds of leaders gather for three days of meaningful collaboration, relationship building, and shared learning.
Like being in the know about Perlara team members’ whereabouts and life science industry events? Look for Perlara On the Go at the beginning of each month!