Tag: patient advocacy

Perlara Events – January 2019

Perlara Events – January 2019

Last June, we launched Perlara On the Go, a monthly post updating you on upcoming events – be they conferences that Perlara team members are participating in, events that may be of interest to the life sciences community at large, or recaps of past events. Read...
2018 Global Genes Summit recap

2018 Global Genes Summit recap

In October, Ethan, Nina and I attended the 2018 Global Genes RARE Patient Advocacy Summit, held in Irvine, CA. This was the 7th annual gathering of rare disease patients, advocates, and researchers, and the largest gathering of the rare disease community worldwide....
Perlara’s 2018 Global Genes presentation

Perlara’s 2018 Global Genes presentation

The Global Genes 2018 RARE Patient Advocacy Summit – one of the key events in the rare disease world – wraps up today. As the largest worldwide gathering of rare disease patients, advocates, and thought leaders, the summit brought together over 100 experts, who led...
Perlara Events – October 2018

Perlara Events – October 2018

In June, we launched Perlara On the Go, a monthly post updating you on upcoming events – be they conferences that Perlara team members are participating in, events that may be of interest to the life sciences community at large, or recaps of past events. Read on...
Translate »